– My role has been both slightly imposed but not least self-imposed, as the mainstay of the family, says Ingrid (45).

– Then I can’t go and ask for help, because then I’ll be weak.

It's been 14 years since Ingrid lost her brother to the drugs. Now her experiences, and the experiences of other siblings in similar situations, have become a subject of research.

Gunhild Skipenes Meen is a researcher and lecturer at HVL. Her doctoral thesis was on these bereaved siblings and their grief.

Griving Alone: When Siblings Pass

– There was little existing knowledge on bereaved siblings, and nothing on bereaved siblings after this particular kind of death. It felt important to shed light on this, says Meen.

Her thesis is part of a national project, the END project, where researchers have looked into the consequences of drug-related deaths on those bereaved and left behind.

Losing one's child is one of the worst things a human being can experience. In our culture, this is an established and recognised truth. But what of losing a sibling, someone you have known all your life?

Gunhild Skipenes Meen's findings shed light on how we as a society perceive the grief of these siblings, but also how they themselves perceive their own sorrow.

Useful field experience

Before doing her PhD, Meen already had several years' worth of experience working with people who suffered from addiction. She carries with her these experiences, and her dedication to this work, in her academic career.

– Each of the deceased usually has at least one sibling, often more than one. The number of overdose deaths in Norway each year is between 250 and 300, and there are at least as many siblings who are left behind, says Meen.

In addition, there are deaths from other drug related causes, like disease and violence. In other words, there's a substantial number of people bereaved, and siblings comprise a substantial part of this group.

– What little research I found on bereaved siblings, revolved around their experience of not really being recognised as bereaved, Meen explains.

How to make meaning?

Meen's research does not tackle grief as something individual and psychological, but rather as a socio-cultural phenomeneon. She has looked into discourses around grief: How do we understand grief in our cultural context, and how do we expect grieving people to act? Who really has the right to grieve?

– Through my research, I have found out more about why bereaved siblings feel a lack of recognition, as well as about the stigma associated with these kinds of deaths, and the position of the siblings, says Meen.

– Siblings can potentially be the longest relationship of your life, so it's peculiar that their status as bereaved is often overlooked.

– How do we as a society make meaning of the relationship between these bereaved and deceased siblings?

In our culture, we have several different recurring storylines we use to make sense of drug related deaths. In this context, we differentiate between stories, meaning the individual stories about the deceased, and storylines. These storylines are social and cultural frameworks which aid our understanding of and communication around events in our lives. While the stories are individual, the storylines are general.

The informants in the END-project often make use of these storylines when making meaning of their experience as bereaved, and of the death they have experienced.

– One storyline, that the parents of the deceased have done something wrong, appears to be particularly prevalent in our cultural context, says Meen.

– And then there are other storylines, used to "acquit" the family of guilt, for instance blaming the system instead. This storyline is typical of the Norwegian welfare state.

Distancing the deceased from "typical addicts"

Storylines about the power of addictive substances are prevalent. In these storylines, the substances have a sort of inherent force, so strong that overcoming it virtually requires a miracle. This way, the deceased siblings are freed from responsibility: It wasn't their fault; the power of addiction is insurmountable.

Many of these siblings paint a picture of their sibling as different from other addicts. They describe them as unique and special people.

– This way, they distanced their siblings from the typical drug addict; they didn't want them to be perceived like that.

As Jonathan (37) says of the brother he lost ten years ago:

– He wasn’t the sort of drug addict you see on the street. Many probably say the same, but my brother was unique. He wasn’t one of them.

The most prevalent storyline among these particular informants, is the storyline about a lack of recognition. Societally, we view losing a child as one of the worst things a human being can experience, but the grief of bereaved siblings is not viewed as equal.

A lot of these siblings have felt that they need to stay strong in their grief and provide support for other family members.

– I’ve felt concerned for my mom, especially. Because her immediate grief reaction was much more physical than the reactions the rest of us had, says John (36), who lost his brother ten years ago.

When Frida (36) lost her brother to drugs, she hid her sorrow from her parents.

– I noticed early on that I didn’t want to burden my parents with my pain. And I was thinking very much about their pain. So, I felt like I was carrying a double grief, she says.

Raising the status of grieving siblings

The stories of the bereaved siblings made an impression on the researcher, Gunhild Skipenes Meen.

– My thesis shows that these siblings are expected to be supportive, not be affected by the death, and not need anything from others. This is also the way they themselves understand their position, she says.

She hopes her research contributes to an increased recognition for bereaved siblings, but also for the deceased.

– I've worked in this field myself, and these are deaths that are not given particular importance in our society, Meen says.

The national research project, the END-project, that Meen's thesis is part of, has not only shed light on the situation of people bereaved by drug-related deaths. It has also paved the way for a national organisation for this group of bereaved people.

The siblings mentioned in this article have been given new names to preserve their anonymity.

This article has been published on forskning.no. The quotes from the siblings are taken from Gunhild Skipenes Meen's thesis.

 

Text: Vetle Nordgård Mikkelsen
Images: Mauricio Pavez and Vetle Nordgård Mikkelsen